“Where is Anna on the list?”
That is the number one question we get, and unfortunately, it’s one we cannot answer.
“The list” and the transplant process are very complicated. Many factors are considered when matching a donor’s heart with a recipient: age, size, blood type, level of illness, geographical region, etc. For our family, the best way to get through this process is just to believe that the right heart will come for Anna at the right time.
That is not always easy to do, and we have our moments of exasperation, but for the most part, it has made it bearable. We believe.
For more information on organ transplantation, visit United Network for Organ Sharing:
Regardless of medical advancements, organ transplants are not possible without the generosity of organ donors, willing to give the gift of life. There are many more people in need of organs than there are donors. Many people have told us that they became an organ donor after hearing Anna’s story, and we are so pleased that we are able to spread awareness of the importance of organ donation, and what it would mean to a family just like ours. For more info or to register as a donor, visit http://donatelife.net
What is cardiomyopathy?
Anna was diagnosed with dilated cardiomyopathy in April of 2012. After having viral symptoms for several weeks, she developed pneumonia and went in for a chest x-ray. That x-ray revealed a mildly enlarged heart. Given her other symptoms, her pediatrician referred her to a pediatric cardiologist to rule out anything heart-related. Unexpectedly, that day’s EKG and echocardiogram showed that Anna was sufferiing from dilated cardiomyopathy. This is a disease that can be genetic, or brought on by a viral illness. Anna’s genetic testing did not reveal any of the known markers for cardiomyopathy, but we can not be 100% sure of its cause.
It is possible that it was from a viral illness she had in 2011. Regardless of the cause, this is what she is facing. For more information on cardiomyopathy, go to Children’s Cardiomyopathy Foundation:
Anna is being cared for by a wonderful team of physicians & staff at
Texas Children’s Hospital in Houston, TX. To learn more about this
amazing hospital & their transplant program, go to: